Indolent Systemic Mastocytosis: Building Bridges of Support and Understanding for Patients and Caregivers

overview

The Mast Cell Disease Society (TMS), the American Initiative in Mast Cell Diseases (AIM), and Medscape/WebMD Education invite you to join us for Indolent Systemic Mastocytosis: Building Bridges of Support and Understanding for Patients and Family, a series of three seminars offered in-person. These events are designed for patients living with indolent systemic mastocytosis (ISM) and their families and loved ones. Attendance at these seminars is FREE, but in-person seating is LIMITED and advance registration is required.

UPCOMING EVENTS

October 19, 2024

Boston, MA

Indolent Systemic Mastocytosis: Building Bridges of Support and Understanding for Patients and Family

January 11, 2025

Mountain View, CA

Indolent Systemic Mastocytosis: Building Bridges of Support and Understanding for Patients and Family

March 22, 2025

Birmingham, AL

Indolent Systemic Mastocytosis: Building Bridges of Support and Understanding for Patients and Family

Seminar Chairs

Boston, MA

Mariana Castells, MD, PhD

Director, Mastocytosis Center

Division of Allergy and Clinical Immunology

Brigham and Women's Hospital

Professor of Medicine

Harvard Medical School

Boston, Massachusetts

San Francisco, CA

Jason Gotlib, MD

Professor of Medicine

Division of Hematology

Stanford Cancer Institute

Stanford University Medical Center

Stanford, California

Birmingham, AL

Pankit Vachhani, MD

Medical Director

Clinical Research Unit

O'Neal Comprehensive Cancer Center

Associate Professor of Medicine

Division of Hematology/Oncology

University of Alabama at Birmingham

Birmingham, Alabama

seminar agenda

These events will feature the same programming presented at each seminar. A panel of world-renowned experts in ISM will partner with patient advocates to discuss the importance of raising mast cell disease awareness, the evolving art and science of identifying and caring for patients with ISM, and the latest developments in the field. The goal of these events is to help patients and their families understand this challenging condition and better prepare themselves to make educated health care decisions. The schedule will include opportunities for attendees to ask questions of the expert panelists, and to connect with other individuals and families living with ISM.

Understanding ISM and related mast cell disorders
Recognizing the long patient journey from symptom presentation to ISM diagnosis and treatment
Managing ISM with preventive and supportive care
Treating ISM with the latest approaches
Empowering patients and their families to become effective self-advocates
Panel discussions and review of key take-aways
Community connection time

Why should you attend?

Connect with leading experts in the field
Gain deeper knowledge and understanding of ways to manage ISM
Opportunity to have your questions answered
Engage with people who truly understand your experiences
Develop a strong community of support
Return home empowered and more prepared to advocate for better care

Who should attend?

Individuals with ISM
Caregivers, family members, and friends
Healthcare professionals are also welcome

AGENDA

8:15 am

Breakfast & Community Connections

9:00 am

Welcome and Introduction

9:45 am

Understanding the ISM Patient Journey

10:15 am

Break & Community Connections

10:45 am

Supportive Care and Symptom Management in ISM

11:25 am

Systemic Management of ISM

12:00 pm

Lunch with the Faculty & Community Connections

1:00 pm

Patient and Family Empowerment and Advocacy

1:40 pm

Final Discussion and Key Takeaways

2:00 pm

Seminar Concludes

GOAL STATEMENT

The [bold]goal[/bold] of this activity is for learners to be better able to increase community clinician awareness and confidence in the recognition and management of AAD as well as agents in development for the management of AA,

TARGET AUDIENCE

This activity is intended for primary care providers [italic](including primary care physicians, nurse practitioners, physician assistants and gerontologists)[/italic], neurologists, psychiatrists, psychologists, and other healthcare professionals (HCPs) as well as patients/care partners involved in the care of patients with agitation in Alzheimer’s disease (AA).

LEARNING OBJECTIVES

[bold]Upon completion of this activity, participants will:[/bold] [para]Have increased knowledge regarding the:[/para] [list][item]Learning objective one [item]Learning objective two [/list] [para]Have greater competence related to:[/para] [list][item][italic]Learning objective one[/italic] [item][underline]Learning objective two[/underline] [/list]

Safety Protocols

Meeting Venues

No carpet cleaning two weeks prior to the events
No air fresheners in meeting rooms, hallways, or lobby
All automatic scent machines for the lobby and public areas will be disconnected at least 24 hours before the meetings
No open scented soaps

Meals

Gluten-free and vegan options will be available
A list of ingredients will be provided for the menu items once finalized
Items will be labeled with Top 9 allergens

Building Bridges of Support and Understanding for Patients and Family CME/CE *

overview

Enhance Your Experience With MedChallenge!

UPCOMING EVENTS

Indolent Systemic Mastocytosis: Building Bridges of Support and Understanding for Patients and Family

Indolent Systemic Mastocytosis: Building Bridges of Support and Understanding for Patients and Family

Indolent Systemic Mastocytosis: Building Bridges of Support and Understanding for Patients and Family

Seminar Chairs

seminar agenda

Why should you attend?

Who should attend?

AGENDA

Breakfast & Community Connections

Welcome and Introduction

Understanding the ISM Patient Journey

Break & Community Connections

Supportive Care and Symptom Management in ISM

Systemic Management of ISM

Lunch with the Faculty & Community Connections

Patient and Family Empowerment and Advocacy

Final Discussion and Key Takeaways

Seminar Concludes

LOCATION

Marriott Birmingham

GOAL STATEMENT

TARGET AUDIENCE

LEARNING OBJECTIVES

Safety Protocols

Accreditation Statement